Although we have had very little time to rest and even less time to think about everything happening, I have come to realize that everything happens in time. Not easy to say for an impatient person like myself. Why this has all happened we don't know yet, however I do know that we listened to Daniel and all of his complaints and worries along the way and never disregarded his pains and blamed him for crying wolf. Because of this, it has led us here today. Through a very long series of incidents Daniel is now in an unusual predicament that only time and modern medicine will allow to cure. We now know that things were missed, mistakes were made and unpredictable misfortunes arose that have now created the perfect storm in Daniel's sick body that make it so that he cannot fight some of these problems on his own,so therefore we need to let medicine and time do their thing.
For a few reasons, I am not going to go into right now, I will just say that Daniel's MRI from yesterday revealed progression of infection and now necrosis of the bone in his hip area since he was released from his hospital stay in February. The Infectious Disease doctors are fairly certain of what type of infection it is but can't be 100% sure witho Now since he has no immune system of his own to fight with because of his Leukemia, he has no ability to fight this infection and now that the chemotherapy is killing off his ability to produce all healthy blood and his coagulating problem prohibit him from being able to surgically remove the infection or even explore and identify it specifically all we can do is treat it with another antibiotic and keep working on his blood to get him ready for surgery...and give it time. So therefore time now ticks away as we wait for him to get to this point. We hope that all things point to the end of the week and they can operate by the then and that by then the antibiotics do their work and his blood keeps going in the right direction so that he is in the right stabilized place to operate.
So another piece of the puzzle falls into place and I get a little more grey hair.
Daniel got out of bed this morning for the first time and we opened the shades and the sun came in for the very first time and we did SOMETHING!!!!! I couldn't be happier. He hasn't liked the tv on or his phone since light or text is bothering his eyes. He sat up in the chair and built a LEGO set. Something he used to love and hasn't done in a very long time. It was quiet and it helped pass more time. Something we have a lot of these days.
For a few reasons, I am not going to go into right now, I will just say that Daniel's MRI from yesterday revealed progression of infection and now necrosis of the bone in his hip area since he was released from his hospital stay in February. The Infectious Disease doctors are fairly certain of what type of infection it is but can't be 100% sure witho Now since he has no immune system of his own to fight with because of his Leukemia, he has no ability to fight this infection and now that the chemotherapy is killing off his ability to produce all healthy blood and his coagulating problem prohibit him from being able to surgically remove the infection or even explore and identify it specifically all we can do is treat it with another antibiotic and keep working on his blood to get him ready for surgery...and give it time. So therefore time now ticks away as we wait for him to get to this point. We hope that all things point to the end of the week and they can operate by the then and that by then the antibiotics do their work and his blood keeps going in the right direction so that he is in the right stabilized place to operate.
So another piece of the puzzle falls into place and I get a little more grey hair.
Daniel got out of bed this morning for the first time and we opened the shades and the sun came in for the very first time and we did SOMETHING!!!!! I couldn't be happier. He hasn't liked the tv on or his phone since light or text is bothering his eyes. He sat up in the chair and built a LEGO set. Something he used to love and hasn't done in a very long time. It was quiet and it helped pass more time. Something we have a lot of these days.