Passover was wonderful. While I was sore and exhausted making a seder for just the four of us, I can't complain for a second (okay maybe a second ). First of all it was great for the four of us to all just to be together and for so long 3 and a half hours and no arguing (okay maybe a little). It was very obvious that Daniel has desperately missed all aspects of Judiasm. He did nkt miss a beat. Yes we had fun, but and laughed and joked and sang but when we tried (okay when I tried) to skip a part or even a sentence Daniel literally freaked out yelling "we're Jews, we aren't skipping any of this, it's once a year." Your wish is our command (as usual) and we did not skip a word. In fact we read every notation, caveat, side bar and stage direction in the Haggadah but he did say in all fairness that it was the abridged version. oy yoy yoy. I know he has always loved his Judaics, this just showed how much he has missed it. It was a great evening and worth falling into bed exhausted.
Unfortunately the next morning Daniel woke up not feeling well. Just run down and overall crappy, headache and nauseous and lethargic, but what scared me most was him complaining that his hip hurts. Hurt enough to need pain medication and that means bad. he had a nap and toughed it out because I knew he had been looking so forward to going to Aunty Debbie and Uncle Kevin's for 2nd seder. Although not quite up to par, he was so glad to go. I personally was so happy to spend a holiday with family and just have a meal with some other company. Good food (well okay food, it is Passover after all) cooked by someone other than me, and great company was fabulous. Daniel misses his Judaics, I miss friends and family. Before bed Daniel of course told me he was glad to have gone but that if he still hurt that bad in the morning he wanted to go to the doctor. Needless to say, I didn't sleep well.
Lo and behold, morning found Daniel feeling a bit better and me very tired, but at least he felt better. Day 2 of frying matzah and him not eating it because he got sick again so I ate it. But by noon he was ready to start the day. Not feeling well enough to join Rob and Matthew for a day out at a movie so the two of us just hung out at home all day.
Tomorrow we go early yo the hospital for a regular weekly infusion and will hope for decreased CMV readings. I have a strong feeling that he is feeling so poorly because the virus is increasing instead. we wont know really until Tuesday night when his results come back but at least we will be able to check into his hip pain. Argh, another moment of frustration.
On the bright side....aw crap, I don't have a bright side tonight. Falling into bed as soon as I finish final dose of meds. Off to hospital in the morning and there is no morning bagel to start with (Passover). We will be back and forth twice to the hospital since Daniel has his radio show in the afternoon. Hey there is the bright spot. See, there is always something to look forward to.
Unfortunately the next morning Daniel woke up not feeling well. Just run down and overall crappy, headache and nauseous and lethargic, but what scared me most was him complaining that his hip hurts. Hurt enough to need pain medication and that means bad. he had a nap and toughed it out because I knew he had been looking so forward to going to Aunty Debbie and Uncle Kevin's for 2nd seder. Although not quite up to par, he was so glad to go. I personally was so happy to spend a holiday with family and just have a meal with some other company. Good food (well okay food, it is Passover after all) cooked by someone other than me, and great company was fabulous. Daniel misses his Judaics, I miss friends and family. Before bed Daniel of course told me he was glad to have gone but that if he still hurt that bad in the morning he wanted to go to the doctor. Needless to say, I didn't sleep well.
Lo and behold, morning found Daniel feeling a bit better and me very tired, but at least he felt better. Day 2 of frying matzah and him not eating it because he got sick again so I ate it. But by noon he was ready to start the day. Not feeling well enough to join Rob and Matthew for a day out at a movie so the two of us just hung out at home all day.
Tomorrow we go early yo the hospital for a regular weekly infusion and will hope for decreased CMV readings. I have a strong feeling that he is feeling so poorly because the virus is increasing instead. we wont know really until Tuesday night when his results come back but at least we will be able to check into his hip pain. Argh, another moment of frustration.
On the bright side....aw crap, I don't have a bright side tonight. Falling into bed as soon as I finish final dose of meds. Off to hospital in the morning and there is no morning bagel to start with (Passover). We will be back and forth twice to the hospital since Daniel has his radio show in the afternoon. Hey there is the bright spot. See, there is always something to look forward to.