We got Daniel’s CMV counts back tonight and his counts went up instead of down. They did not go up significantly on the grade scale I guess but they did not go down which is the most important thing. They went from 144,000 copies to 229,000 copies. Q and Q is 1,000 is what we are technically looking for to get to a treatment maintenance level. So I have been on egg shells wondering if we should be packing up getting ready to go back to the hospital tomorrow. I was ready to beg and plead with the Doctor to let us stay home through change of treatment no matter what. Daniel is doing so great. He is sleeping well, eating great and feeling fabulous. Yes he is not really exercising and yes he is playing to much video games but he needs to be home. Thank goodness the Doctor finally agreed with me and we decided to give change of treatment a chance at home for at least a week and we will increase his dosage of antiviral medication and begin to start weaning his antisuppressants earlier than expected. This ultimately will start to allow his own new immune system a chance to start fighting this virus. The drugs he is getting (and now at an increased dose) are knocking it down relentlessly. I think this sounds like a great plan, and also one that although a little scary because we will need to monitor him more closely for so much more, is the best course of action. I will sleep a bit better tonight knowing that we are not going back to the hospital tomorrow and that we are paroled a bit longer. I get more time to cook, and clean and do laundry and shower and blowdry my hair and make home cooked food and enjoy the comforts of home. I’ll take it.
Now all thoughts can be with my sister in Toronto as she has her final surgery on Wednesday to complete her final reconstruction after her yearlong battle with breast cancer. I would like to be there with her, but she understands I can’t be. I wish her a successful surgery and quick and easy recovery and that the surgeons are skilled to do their very best work on my sister to make her life better and more comfortable. I hope we will soon put this year in the past an take our new ta-tas on a the get-a-way we have talked about for so long. NO MORE EXCUSES.
Now all thoughts can be with my sister in Toronto as she has her final surgery on Wednesday to complete her final reconstruction after her yearlong battle with breast cancer. I would like to be there with her, but she understands I can’t be. I wish her a successful surgery and quick and easy recovery and that the surgeons are skilled to do their very best work on my sister to make her life better and more comfortable. I hope we will soon put this year in the past an take our new ta-tas on a the get-a-way we have talked about for so long. NO MORE EXCUSES.