What a hectic past few days of emotion. We got the final test result from Daniel's last Bone Marrow biopsy that we have been waiting for. Daniel is 100% leukemia free and on even the highest levels of detection showing no signs of disease. This is after his 100DAYS and his Transplant doctor feels there is no reason to believe he will loose his graft from this point or that it would be very unlikely. His CMV virus is significant;y decreasing this past week and it was time to take him off of his antibiotic from his hip infection that he has been on since last June. These are all big things in the right direction. Another big thing was we had our first big visitors this weekend (pictures to follow). My parents came for a visit. They have not been here since October, before Daniel's transplant. Because of Daniel's virus and the crazy cold and flu season this year, we have had an extended sort of isolation period so have not really been seeing anyone, including any of our family or friends. It was so nice to see my parents and as a treat they babysat like the old days and Rob and I went out on a double date with our dearest friends Andrew and Christine. Daniel kind of gave us the cold shoulder about it. I don't know if it was about leaving him with babysitter's was the problem, or he felt abandoned, but yo know at this point in the game I didn't care. I really, REALLY feel like Rob and I deserved a night out and I miss going out with Andrew and Christine so much. It was so nice to get out and feel sort of normal and then I realized what heightened alert I was on. I was so concerned about Daniel eating and getting his medication on time. I was distracted and overwhelmed by the amount of germs I was being exposed to and upset by our conversation and then I realized that this was what integrating back into life was going to be. I had a great night and know that we need to start doing it more often because that is what we have to do. Get back to normal life.
I hope spring is here to stay and with it comes a stronger immune system with all of Daniel's friends getting healthier so that they can start coming around. I miss the full house and want the chaos of kids again around so that he can get a sense of normalcy back in his days. This isolation thing is really hard on him and I can tell by just how much he has been looking forward seeing his friends again. He is so bored at home and spends so much time in his room on his phone or laptop. I know he texts with his friends constantly and is busy doing something online but he is so not social or productive. Yet he can't get out and be active. Oh and we still have until next November. Argh, it is going to be a long year. I keep saying we are making so many sacrifices and they are worth it for having him get healthy but it is all so hard mentally. Come on kids get healthy so you can come over. I am not a teenager and I know how much I miss my friends and going out, I can't imagine how bad it is for him.
I hope spring is here to stay and with it comes a stronger immune system with all of Daniel's friends getting healthier so that they can start coming around. I miss the full house and want the chaos of kids again around so that he can get a sense of normalcy back in his days. This isolation thing is really hard on him and I can tell by just how much he has been looking forward seeing his friends again. He is so bored at home and spends so much time in his room on his phone or laptop. I know he texts with his friends constantly and is busy doing something online but he is so not social or productive. Yet he can't get out and be active. Oh and we still have until next November. Argh, it is going to be a long year. I keep saying we are making so many sacrifices and they are worth it for having him get healthy but it is all so hard mentally. Come on kids get healthy so you can come over. I am not a teenager and I know how much I miss my friends and going out, I can't imagine how bad it is for him.