We are on an upward swing in how Daniel is feeling. He is spending larger blocks of time awake and is not needing oxygen at all during the day. He is only using it for part of the night. Tests show his virus is not drug resistant to the one they have chosen, thank goodness and it is slowly doing it’s thing to knock out the CMV virus. The kicker is his level was so darn high when they tested it on Monday 267,000 that he has a very long way to go to have it come down. It has come down enough that the doctors feel they do not need to add a second drug to help with this. This second drug is too hard on his new marrow. Either the virus or the drug he is taking right now are already beating down his marrow and he is needing GCSF (boost) every day now to help support his marrow. It is really all like a math equation and balancing act. His blood will be checked again tomorrow to see where we are at with a few more day’s of viral treatment. Clinically he is looking a lot better though. He has gotten out of bed a few times and is working hard again with PT (this time he is liking Kristin a little more and has not kicked her out yet) . He started this online driver’s ed program and doesn’t like it. HE feels it is boring and wants to be in the classroom with other kids. Can’t help him with this, he will just have to tough that one out. Best of all last night and today he has eaten soup. He is hungry now which is great and at least willing to try to eat (in theory) with the NG tube. He knws that he is holding down the fomula now so there is no reason that he wont hold down food. It just feels weird and the tube makes him gag. Soup is a good start and before the weekend is up, hopefully he will have the tube out. I know he will be a thousand times happier then. Progressing slowly in the right direction in all areas.