Yesterday was a very emotional day for everyone but was spent in the best way possible for Daniel, with friends. I spent the whole day thinking of the day Daniel was diagnosed one year ago and everything that has happened ever since. Mostly of all the triumphs he has seen and what he has amazed us with accomplishing instead of all the pains and losses. Those have been too great to recount but the good truly does overshadow the bad. I try to not think of what the future holds and just that we have one to live. I know the basics and what will be but I would rather think of what we have and that is Daniel and everything he gives to us.
Today started like most others. A lazy teenager not wanting to get up but after poking and proding and finishing morning meds Daniel felt a lot better than he had after a really rough couple days of eye procedures. Finally the pain in his eyes was mostly gone and thank goodness most of the pain medicine and heavy drugs were out of his body. He did nothing yesterday but sleep and throw up after getting home. Like a bad hangover he slept it off the whole day and night and had reawakened much better. His eyes had not readjusted well to the light so we went and bought him some new very dark sunglasses to black out most light. He will be having these eye treatment twice a week for quite a while so he will need them constantly. After shopping the two of us went for a nice lunch and although it was not a celebration it was just an acknowledgement of his success. By this time I had been crying on and off for hours from all my nice messages and sentiments from friends and family near and far and realized by late afternoon that Daniel and I made a little toast at lunch but never really talked about why. We don’t need to. We have our own language and understanding between us now and although we do talk about everything, some things just really don’t need to be discussed.
When we got home Daniel’s friends came over for a walk and I ran to the store. Again advised to not leave him alone watching him for any problems post surgery/procedure. At the store I called to check in and heard the boys having such a great time I suggested they stay for pizza and movies. Add one more best buddy and it became the best time Daniel has had in a very long time. One very large pizza, many many rootbeer floats. S’mores made (lord know how, there were fondue forks out of a box and the grid off the gas cook top- I am not asking questions), stupid movie watched and lots and lots of swearing and laughing had. Daniel politely asked me to lease go out to dinner and then when I called to check in asked if we would go to a movie. It worked out well for everyone.
I know I write this blog and I update Facebook but when I put something on FB yesterday Daniel couldn’t believe the amount of likes I got so fast. I said it is because everyone loves him and supports us all and is happy he is doing so great. The ‘likes’ for me is the same as ‘likes’ for him and it made him feel pretty good. G-d forbid his mom has more friends than him right? That being said he doesn’t use FB as much as Instagram. Again he says Facebook is for old people- whatever? But Daniel put something on his Instagram that truly tore me apart that I wanted to pass on because although these blogs are soley from my perspective and you all get to know about Daniel’s year, you haven’t gotten to see what Daniel thinks of it from his perspective. This is what it has meant to him. I am so in love with him and immensely proud of him every day, but to see how he has handled his hand he has been dealt makes me marvel to unimaginable heights. I have been honored to get to have a front seat and watch him every moment. Ladies and gentleman please get out your tissues:
Today started like most others. A lazy teenager not wanting to get up but after poking and proding and finishing morning meds Daniel felt a lot better than he had after a really rough couple days of eye procedures. Finally the pain in his eyes was mostly gone and thank goodness most of the pain medicine and heavy drugs were out of his body. He did nothing yesterday but sleep and throw up after getting home. Like a bad hangover he slept it off the whole day and night and had reawakened much better. His eyes had not readjusted well to the light so we went and bought him some new very dark sunglasses to black out most light. He will be having these eye treatment twice a week for quite a while so he will need them constantly. After shopping the two of us went for a nice lunch and although it was not a celebration it was just an acknowledgement of his success. By this time I had been crying on and off for hours from all my nice messages and sentiments from friends and family near and far and realized by late afternoon that Daniel and I made a little toast at lunch but never really talked about why. We don’t need to. We have our own language and understanding between us now and although we do talk about everything, some things just really don’t need to be discussed.
When we got home Daniel’s friends came over for a walk and I ran to the store. Again advised to not leave him alone watching him for any problems post surgery/procedure. At the store I called to check in and heard the boys having such a great time I suggested they stay for pizza and movies. Add one more best buddy and it became the best time Daniel has had in a very long time. One very large pizza, many many rootbeer floats. S’mores made (lord know how, there were fondue forks out of a box and the grid off the gas cook top- I am not asking questions), stupid movie watched and lots and lots of swearing and laughing had. Daniel politely asked me to lease go out to dinner and then when I called to check in asked if we would go to a movie. It worked out well for everyone.
I know I write this blog and I update Facebook but when I put something on FB yesterday Daniel couldn’t believe the amount of likes I got so fast. I said it is because everyone loves him and supports us all and is happy he is doing so great. The ‘likes’ for me is the same as ‘likes’ for him and it made him feel pretty good. G-d forbid his mom has more friends than him right? That being said he doesn’t use FB as much as Instagram. Again he says Facebook is for old people- whatever? But Daniel put something on his Instagram that truly tore me apart that I wanted to pass on because although these blogs are soley from my perspective and you all get to know about Daniel’s year, you haven’t gotten to see what Daniel thinks of it from his perspective. This is what it has meant to him. I am so in love with him and immensely proud of him every day, but to see how he has handled his hand he has been dealt makes me marvel to unimaginable heights. I have been honored to get to have a front seat and watch him every moment. Ladies and gentleman please get out your tissues: