After multiple days of angst and uncertainty my mind had started to play tricks on me. I was at the point where I was coming up with reasons the nurses, the clinic, the doctors were not returning my calls or were not telling me the results of Daniel’s Monday Bone Marrow biopsy. Why weren’t they in by now. Had they been withholding the information because it was bad. Are they waiting until we are there for our next appointment? Are they letting us enjoy our one year celebration next week and then they will drop the bomb shell? Are they going to let us go to Israel and then tell us? They told us they should have the preliminary results within 24 hours 48 at the latest. But now it is much longer than that and my parents and my sister have called or texted for news what feels like 3 million times. It has only made me more anxious. I am trying to function like a normal person yet I see the past 18 months like déjà vu all over again, again and again and again. I am trying my hardest to not lose my mind, or go to the hospital and pull a Shirley McLaine. I am trying really hard to stay busy and distract myself. And then 70 hours and 35 minutes later the answer finally came. There is no evidence of Leukemia cells in Daniel’s bone marrow. This is just his preliminary test. We still need to wait for his Phish test and his chromosome testing but this is great news. The tears come. The tears of joy, the tears of relief, the tears of exhaustion. From the past three days, from the past year. We have so much to celebrate and so much to be thankful for. This is one year down and four more to go now. Doctors say we need to be clear for 5 years before we are forever safe and clear to not worry. I don’t know if I will ever be THERE, but I sure would like this part of it off my list. One year down.
1 Comment
Zaida earnie
11/8/2015 08:02:11 am
Thanks to God ; the doctors and staff at Children's ; especially to the donor of the bone marrow transplant and most of all to Nadine,.Robbie and Matthew for steering Daniel through the rough waters of that desease to his present wonderful stage of health and hopefully everything will carry forward for the next four years
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