After a terrible night of pain from mouth sores keeping Daniel up and him not being able to even drink a sip of water without wailing, Doctors have once again increased his pain medication to help with his discomfort. He was very resistant to the rinses and remedies they recommend until this morning when he hit a wall and we had a little talk. He realized that he was in fact able to overcome the pain in his leg even though it took two weeks and a lot of grief, but he did it, and he can do this too. He can do anything! He got a little pep talk for Coach Foonberg too who knows first hand how bad it can get. He knows that he has to put in the work (doing the yucky rinses) because he said that he can't possibly deal with this pain for two weeks. He wants to be able to eat so bad. His weight this morning is unfathomably down again and that makes it almost 15lbs lost on his already skinny body. It is amazing he is able to have any energy and a will power. It amazes me what the body can withstand, and what mother's heart can watch happen to their child. I will keep my strength for him.
1 Comment
Rayna Halzel
6/22/2014 07:38:54 am
Hang in there. Many prayers and positive thoughts are heading your way... both to Daniel to keep fighting the fight and being strong each day... and to Nadine to stay as strong as always! You are an amazing mom! Sending hugs!
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