Just when I thought we were smooth sailing into another boring road of just waiting for counts to recover, we have hit our first road block of the trip. He got mad at me when I told him his eyes were probably hurting from watching too much football on the TV, Ipad and phone at the same time all day but joking turned to not so funny anymore when the pain in his eyes became excruciating. We spent all night up trying to comfort him and get him to sleep. Eye drops alone were not helping and the sensitivity to light was terrible. I am not sure if it was hurting him more to keep them closed or open them but he is just in a lot of pain. Finally sleep came at about 5AM but not before a long night of tears and screaming. It is hard to say "I know, I know" when I don't and he reminds me of that repeatedly. He cries a lot of make it stop. I tried to quietly tell him that he has already overcome so much and he will get through this too. Finally waking up around 9 wasn't easy when the light couldn't be kept out of the room. We tried his night masks and wash clothes and sunglasses but it felt better for his eyes to be open, I feel like I am trying everything. He eventually went to the dark bathroom and sat in the shower which I quickly said would NOT BE AN OPTON for the day. Luckily we have the outer anti room in our fancy suite here at TCH so I moved the recliner out there and covered the hall window with blankets. My phone light and computer light and frankly my every move are bothering him yet he wants me here beside him so alas I am sitting in a chair typing with 0 brightness on my screen. This may make absolutely no sense when any of you read this, because I can not see a thing. Then again I am so tired it may not make much sense anyway. Finally he got some pain meds a few minutes ago so maybe he will get some sleep and I can go brush my teeth. Head nurse Nancy says she has been expecting this as his numbers start their decent. Good old ANC went from 840 yesterday to 320 today so we are on the right track for that, but just starting to head into the storm I guess. I suppose I should catch some zzzzzs before it gets too bad.