I am glad to report that we have some answers. Listen, it is kind of weird to hope for certain illnesses or problems, but if you are going to have something I am glad that we have confirmed todays tests and I will tell you why. Cultures came back showing in fact that Daniel has CMV in his lungs. This means it is in his blood and in his lungs. Therefore, we can take IPS out of the equation and that means taking steroids out of the picture. This is great news. The steroids even though they have only been in his system for a few days have reaked havoc with him. They are awful and have done terrible things to him. He has been sore and achy in his joints and his nausea is off the charts but worst of all his blood pressure has been so high and they have been unable to get it down even with repeated doses of medication. Thankfully now that we can discontinue the Embrol and Steroids and they have increased the dosage of the hypertension medication that will be controlled soon and we can get on our way to knocking down the ACTUAL CAUSE of the problems. Next and hopefully final puzzle piece to make this work properly is the Tuesday test result we wait for, to find out if his virus is resistant to the drug they are currently treating him with. If this is the case, then they will switch the particular antiviral to the one that works. Meanwhile we watch for improvement in clinical symptoms. Since Daniel’s CMV counts last Monday and Tuesday were so very he has a long way to go to bring them down. They will test those levels on Monday again since they don’t really see the levels come down so quickly.
The craziest thing about the day is that with how terrible Daniel has been sleeping and feeling he actually slept through the Green Bay Packers playoff game today. All gear stayed in its bag and he woke up literally 5 minutes after the game ended. But how glad are we that his team won. All the doctors and nurses here on the floor and the one room service delivery guy were so concerned for Daniel and the Packers. It is a true testament to him what he has created. He has created a large following of new cheese heads everywhere, rooting for the Packers. I believe they are more rooting for Daniel personally.
The craziest thing about the day is that with how terrible Daniel has been sleeping and feeling he actually slept through the Green Bay Packers playoff game today. All gear stayed in its bag and he woke up literally 5 minutes after the game ended. But how glad are we that his team won. All the doctors and nurses here on the floor and the one room service delivery guy were so concerned for Daniel and the Packers. It is a true testament to him what he has created. He has created a large following of new cheese heads everywhere, rooting for the Packers. I believe they are more rooting for Daniel personally.