I am up and running again. I was having a computer issue for a few days. In those days we were holding our breath that Daniel would have to be going back to the hospital once again, but luckily we have this week at home for now. His CMV numbers came back a tiny bit lower last night and have decided to stay the course and keep treating him as we have been for another week. Meanwhile we are sending his virus of to another lab for another resistance test to see if he is possibly building up a tolerance for the drug he is taking. Until next week an we see his numbers again that is all we have. Unfortunately the only other drug option would require him going back into the hospital so that he could be closely monitored. The reason the doctors are so hesitant to begin the other drug treatment is that it is detrimental to his Kidney health and they are not ready to pull that trigger quite yet. It is now getting into a tricky area of long term organ compromise with the one drug treatment he has been on for so long, or acute damage resulting in need for dialysis with this new drug. It is a very sharp double edged sword and although I am impatient with a decision, I am grateful the Doctors do not make these decisions lightly. Tuesday night and the resistance test won’t be back until at least late next week anyway, meanwhile Daniel continues to feel alright. His tapering of his antisuppressent is almost done and although his nausea and vomiting has increased and is more than a bit of an annoyance, overall he is feeling pretty good. This is why once and for all we would just like to get over this hump and move along on this road.
He is back to studies and off spring break so that has been helping to fill some time aside from his video game schedule and he is looking forward to starting in class driver’s ed in a small classroom this coming weekend. Although it will be cumbersome with the mask and keeping away from others, I am sure he will be glad to be doing something that is close to teenage normal…although I guess sitting on the sofa all day playing video games is pretty teenage normal. Hmmm.
He is back to studies and off spring break so that has been helping to fill some time aside from his video game schedule and he is looking forward to starting in class driver’s ed in a small classroom this coming weekend. Although it will be cumbersome with the mask and keeping away from others, I am sure he will be glad to be doing something that is close to teenage normal…although I guess sitting on the sofa all day playing video games is pretty teenage normal. Hmmm.