So it add to a perfectly settled evening Daniel has figured out how to get live footfall on his iPad and is now in hog heaven. I have a feeling I will be having a lot more free time on my h
If ever there was great news like this I am happy to report that my unicorn child is just that. We have no real explanation for any of this bizarre and terrifying incident. We do know the following FOR SURE. He had many many tests. He had a CAT SCAN. He had and MRI. He had a couple hours of EEG readings done. they all definitively prove he did not have a stroke. He did not have a seizure. He had no bleeding in his brain, he had no clots found in his brain. There must have been swelling in his brain but that had resolved by the time he was down in the CAT scan machine because it did not show by then. It was obvious to me the only one that knows him and his behaviors that everything was resolving as the manatol medicine given to reduce swelling. As I calmly talked him through the scary experience, taking him out of the room, fitting 18 people in the elevator with the massive amounts of emergency equiptment ... i tried to inject his particular type of humor. There was just him and I in that moment they worked. The doctors and nurses worked away doing what they needed to do to make sure they were preparing us for the worst case scenario (just doing their job) but as this was happening back from this "episode" came Daniel. We made eye contact and I saw him coming back. I new whatever it was WAS NOT worst case scenario. But poor Daniel was trapped in an uncooperative body that was scaring him to death. This poor baby. So in the end and in panic mode-us -not them. Thoroughly determined NOTHING IS WRONG! I am here to tell you ICU is definetly not an upgrade from the 7th floor. When we finally got back up to our room and the doctor came for a visit Daniel had a very valid theory to explore that she very much was in agreement with, except she added the technical termonoligy to his analysis of "it was just weird" and that was it. Because of the unknown cause and nature of everything and resolution of it all we have determined that thankfully there is no reason that this should happen again. It is just another one of the WIERDNESSES of Daniel. He is so smart and I really praise him for his way of talking through it with he doctors who were trying to piece everything together. It is so important that he advocates for himself and he does so beautifully. I am able give an outsider perspective but only he can give it from his perspective.
So it add to a perfectly settled evening Daniel has figured out how to get live footfall on his iPad and is now in hog heaven. I have a feeling I will be having a lot more free time on my h
2 Comments
Ann Marie
8/10/2014 02:23:26 am
BELIEVE
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