Well it finally happened. Daniel is starting to ask when he can go home. I only wish we could answer him. He is so frustrated. He is starting to scream at the annoyance of the beeping machines and the unrelenting nurses and their assistants coming in every 30 minutes for I don't know what reason. Housekeeping comes in to bleach everything floor to ceiling twice a day (I personally don't mind this and wouldn't mind this at my home on a daily basis) and the sounds and smells of everything present annoy him. Although his leg pain seems to thank goodness be mostly subsided at this point, I assume due to the chemotherapy getting rid of the Leukemia cells. Subsequently the nasty chemotherapy drugs have now left him with mouth sores that are a different kind of misery. He is unable to even drink water and is refusing all suggestions to help himself. He is now cranky and inconsolable. I can't relate and he keeps reminding me of this so I need to back off and let him be. By 8 o'clock I insisted on putting on a video to distract him. I selected our Planet Earth series and low and behold he was transfixed. He quieted down long enough to relax at least. I may be on to something. Thank goodness it is a box set and we have like 10 more hours to go because I don't know when we are getting out of this joint.
4 Comments
Venessa
6/21/2014 03:03:37 pm
I am thinking of you daily. My deepest love to you and to Daniel. There is no way I can take the pain away, but will happily help in whatever way possible. Including fart jokes.
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Katy
6/21/2014 10:06:09 pm
You are a great writer and thank you for sharing your family and son's journey. My Morher's heart hurts for you and all your family has endured lately. Praying for God's perfect peace in the midst of these storms, comfort for Daniel, and endurance for you and your husband as you care for him and continue the normal as well as you can.
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Ann Marie
6/22/2014 01:21:55 am
Daniel-
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Pam Mendelson
6/22/2014 01:56:55 am
Dear Nadine, Daniel, Rob and Matthew + extended team,
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