What can I say. I feel we are back to the daily hospital schedule all over again. Predominantly bordom and that is okay. Since Daniel is on the inpatient board all the nurses and CAs are popping in left and right for visits. It is great to see everyone and show off how great Daniel looks and is doing. We are referring to this stay as a short CMV summer camp and sticking to the intention of it being two and no more than three weeks. We are doing a whole lot of nothing and Daniel has figured out how to hook up to XBOX Live and is playing non stop with brother Matthew at home. It is the most they have played together in a long time without fighting. Other than that. Nothing much is going on. My parents are in town and having some visits and we are mostly just having long quiet days.
We are in the far back room on the west wing of the hospital and it is slow. I have met a few other moms and can’t believe what we all go through. Both these mom’s are struggling with their kids back in the hospital after many years in remission. I went to sleep thankful again last night for Daniel’s donor and his transplant and his second life. He is here to make the most of it. I hope he will only spend these few short years wasting it on xbox. I know I will spend my life worrying about his leukemia coming back but with the transplant I should never really have to worry about that.
Today he had another eye procedure but it was here at Children’s Colorado and it was with a new Doctor (that looked about 12) and new team of anesthesiologist and in the operating room so after many procedures that we felt we had down pat Daniel and I were starting from scratch to reexplain the perfect cocktail of sleepy drugs and wake up drugs and pain drugs and procedural stuff and it was exhausting but it went beautifully and hopefully will be smooth sailing from here. Daniel really liked the doctors. By late afternoon he was resting in his room in the dark and back to playing his xbox but dimmed down. He did however have an epiphany . He said “Mom, if I don’t go to college for Journalism I think maybe I will become an Anesthesiologist as a fall back. They are rock stars and everyone loves them. “ Okay fine… If you must. Said the not so upset Jewish mother.
We are in the far back room on the west wing of the hospital and it is slow. I have met a few other moms and can’t believe what we all go through. Both these mom’s are struggling with their kids back in the hospital after many years in remission. I went to sleep thankful again last night for Daniel’s donor and his transplant and his second life. He is here to make the most of it. I hope he will only spend these few short years wasting it on xbox. I know I will spend my life worrying about his leukemia coming back but with the transplant I should never really have to worry about that.
Today he had another eye procedure but it was here at Children’s Colorado and it was with a new Doctor (that looked about 12) and new team of anesthesiologist and in the operating room so after many procedures that we felt we had down pat Daniel and I were starting from scratch to reexplain the perfect cocktail of sleepy drugs and wake up drugs and pain drugs and procedural stuff and it was exhausting but it went beautifully and hopefully will be smooth sailing from here. Daniel really liked the doctors. By late afternoon he was resting in his room in the dark and back to playing his xbox but dimmed down. He did however have an epiphany . He said “Mom, if I don’t go to college for Journalism I think maybe I will become an Anesthesiologist as a fall back. They are rock stars and everyone loves them. “ Okay fine… If you must. Said the not so upset Jewish mother.