After Day 21 and Daniel not progressing past and ANC of 100 regardless of how great he was doing the doctors put him on a drug called Filgrastim or Neupogen (GCSF- granulocyte [type of white blood cell] colony stimulating factor). This is a synthetic drug that stimulates the stem cells and white blood cells, and that it did. Daniel went down to 99 yesterday and after one dose of GCSF, woke up with an ANC of 1620. Yep, you read that correctly. Yes it is manipulated and yes we now will never really know if he would have gotten there himself but to heck with it, you know what, at this point give the kid a little boost and get him on his way. They will continue to give him this boost until he can maintain making these cells robust on his own. There could be bone pain related to this drug but generally not in someone that is so depleted of healthy bone marrow. It will surely be worth the trade off when Daniel can relax at home because that is where we will be by the beginning of next week. That is right. We are going home. If all goes well through the weekend we will be home possibly Monday. With this came a frenzy of cleaning today. I was home all day cleaning places in the house one never thought dirt could go. Sure enough I looked and found there was dirt there. But no longer is it there. The walls are freshly painted. Carpets shampooed. Floors washed within an inch of their life. Dog groomed. Windows Cleaned. Ducts (to be) cleaned (in morning). I even had a nice visit with my friend Lisa P. who came to clean out a closet with me. I wanted to thank my husband and wife cleaning people who came all day today an proceeded to dismantle my house getting ready for Daniel . These people also clean our store as well as our home. They have prayed and cried everyday for Daniel and our family's health and well being. These good people have cared as much as any friend or family member all year. They came in today and washed every wall floor to ceiling. They wiped everything that wasn't nailed down and if it was nailed down they unnailed it, washed it and nailed it back up. They are as excited about us coming home as we are, however Daniel and I are trying not to get too excited about going home and trying not to jinx it but it is really hard at this point to not get a little excited…and anxious and nervous, and scared. There is a lot at stake with going home but tonight I am just going to take my tired, aching body and fall asleep for one of our last nights at the hospital. I can't say I am going to enjoy it more or less than any other night. Although it is a little easier to sleep when you know that home is that much closer.
3 Comments
mom
12/4/2014 01:55:02 pm
What can I say. Aunty Bodie and myself got goosebumps reading the blog. I could not be any more pleased at how you and daniel have come so far.you will continue your journey all the way to the rainbow that awaits you. The pot of gold is within daniel thanks to the wonderful donor.love you guys a whole bunch.
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Brenda
12/4/2014 09:32:12 pm
That is fantastic for all of you. Of course you will do anything to help his recovery. So happy for you all.
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Mandy
12/4/2014 11:19:00 pm
Great News. Clean house and Daniels ticket home is the best news <3 sending love and strength now and always
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