Well all things considered, I had a nice couple hours away from the hospital. By the time I finally left at NOON. I had made Daniel breakfast, got all of his work organized, changed his bed, cleaned my bed back to a sofa so he could work all day sitting at a table and got him in and out of the shower. Finally after after great news in rounds I left. When I returned (half a dozen phone calls later) three and a half hours later, Daniel admitted that it was probably not such a good idea and it may have been too long. Warming up his own lunch did not go so well so he was starving (Hello- room service perhaps, multiple snack options in our cupboard-whatever). He got a lot of homework done, but had a lot of distractions. All and all he realized how much he needs me and I learned how much I have enabled him. So I guess we clearly understand eachother. The picture below is perfect example of this. Daniel likes only the ice cream cone and I didn’t want to waste the ice cream. The perfect pair!
As far as our GOOD NEWS from the doctors, it looks as if we may be able to be discharged tomorrow. With yesterday’s CT scans showing marked improvement in Daniel’s lungs which means a decrease in CMV in the lungs. It would have been great to have a large decrease in CMV viral copies (units of measure) in his blood but that was not the case. There was not an increase at least, but not a large decrease, but nevertheless there was a slight decrease and I will take it. Plus last night Daniel was able to spend his first night without needing oxygen. If he can do this again tonight they will consider possibly discharging us tomorrow. With this comes a lot of stipulations. He will need several upon several hours hooked up to IV meds and fluids at home but the key is that he is at home. He will need to come back for frequent checks to the hospital and on Monday if his blood levels (results wont be back until Tuesday) are not where they need to be he will require a change in protocol and that will likely mean readmittance until we can finally knock this thing out. The doctors are not comfortable being patient with this virus and do not want to just watch and see. Let’s hope getting him home and comfortable in his own surroundings gives him the boost he needs. Maybe some Super Bowl food and Celebration will be just what he needs. I personally think chicken wings may just be the trick he needs. SO we are off to bed hoping for a hopefully good last night. I am fully prepared for it to not turn out that way. I have learned that this is the way things go and we don’t get our mind set on things too much around here, but tonight we will be saying a little prayer for deep breathes and no oxygen support and a ticket out of here tomorrow.
As far as our GOOD NEWS from the doctors, it looks as if we may be able to be discharged tomorrow. With yesterday’s CT scans showing marked improvement in Daniel’s lungs which means a decrease in CMV in the lungs. It would have been great to have a large decrease in CMV viral copies (units of measure) in his blood but that was not the case. There was not an increase at least, but not a large decrease, but nevertheless there was a slight decrease and I will take it. Plus last night Daniel was able to spend his first night without needing oxygen. If he can do this again tonight they will consider possibly discharging us tomorrow. With this comes a lot of stipulations. He will need several upon several hours hooked up to IV meds and fluids at home but the key is that he is at home. He will need to come back for frequent checks to the hospital and on Monday if his blood levels (results wont be back until Tuesday) are not where they need to be he will require a change in protocol and that will likely mean readmittance until we can finally knock this thing out. The doctors are not comfortable being patient with this virus and do not want to just watch and see. Let’s hope getting him home and comfortable in his own surroundings gives him the boost he needs. Maybe some Super Bowl food and Celebration will be just what he needs. I personally think chicken wings may just be the trick he needs. SO we are off to bed hoping for a hopefully good last night. I am fully prepared for it to not turn out that way. I have learned that this is the way things go and we don’t get our mind set on things too much around here, but tonight we will be saying a little prayer for deep breathes and no oxygen support and a ticket out of here tomorrow.