Been a pretty normal night and day so far. Things are progressing well. Doctors are pleased with everything as far as Daniel’s status so far. His mouth sores are getting worse and his throat is really sore but that is what they expect at this stage unfortunately and nothing can really be done until his body can start to heal them on it’s own. That will probably start to happen in about 5-10 days and that will actually be in indicator that he is on the road to recovery. When his mouth starts to get better that means that his body is making new cells to heal itself. This will happen slightly before the numbers start coming up, so that in fact is what we will be waiting for before we even see those pesky numbers climb again. In essence, how he feels is more important than numbers on a page anyway. In the meantime the only real thing we can do to help is give him pain medicine. So he now is receiving continuous morphine on a pain pump to control the pain so he can continue to take his regular boat load of daily pills and keep eating, because he still has an appetite, unfortunately the morphine is making him nauseous. The down side is Daniel spent the whole afternoon sleeping again, which I hate, because I feel it wastes so much precious time we can be arguing. No, not really. I spent time cleaning up our little apartment again and decorated the door with a big Green Bay ‘G’ for him when he wakes up. I am sure he will have some serious critiquing for me and we can get back to arguing.
The highlight of my day so far was finding out that Rob surprised Matthew with booking a trip for him for his fall break next week to go away with his cousin Gordy (and Aunt and Uncle) for the whole break to Palm Springs. It will be so nice for him to get away from it all and not have to be stuck at home alone. I haven’t seen Matthew at all since we got here almost three weeks ago now since he has had a cold and I think this has been one of the hardest things for me. I know it isn’t for Matthew, being a typical 16 year old, but I am glad he will get some solid family time and mothering from Aunty Debbie, LIKE IT OR NOT. I know he will have a fabulous time with Gordy and won’t miss us at all. This will ease my mind for a wee not worrying about him for a minute that he is alone at home and will help Rob not have to worry about running back and forth to split time between home and the hospital. It has been a challenge for Rob to say the least. I can’t even begin to imagine his exhaustion and can’t say enough thank yous to him for the load he is carrying for the both of us. This situation is challenging for any family as anyone can imagine. It has the potential to destroy the strongest of families. I can see it happening everyday within these hospital walls. I am grateful to our extended family and friends that are supporting us through this trying time. Even though most of you offer your help and there is not much I ask for please know that your offers and words mean the world to me and that is what counts when I need it most. The time may come when I do ask for more help and I do know who my village is. I am glad to have you all.
The highlight of my day so far was finding out that Rob surprised Matthew with booking a trip for him for his fall break next week to go away with his cousin Gordy (and Aunt and Uncle) for the whole break to Palm Springs. It will be so nice for him to get away from it all and not have to be stuck at home alone. I haven’t seen Matthew at all since we got here almost three weeks ago now since he has had a cold and I think this has been one of the hardest things for me. I know it isn’t for Matthew, being a typical 16 year old, but I am glad he will get some solid family time and mothering from Aunty Debbie, LIKE IT OR NOT. I know he will have a fabulous time with Gordy and won’t miss us at all. This will ease my mind for a wee not worrying about him for a minute that he is alone at home and will help Rob not have to worry about running back and forth to split time between home and the hospital. It has been a challenge for Rob to say the least. I can’t even begin to imagine his exhaustion and can’t say enough thank yous to him for the load he is carrying for the both of us. This situation is challenging for any family as anyone can imagine. It has the potential to destroy the strongest of families. I can see it happening everyday within these hospital walls. I am grateful to our extended family and friends that are supporting us through this trying time. Even though most of you offer your help and there is not much I ask for please know that your offers and words mean the world to me and that is what counts when I need it most. The time may come when I do ask for more help and I do know who my village is. I am glad to have you all.