Aside from watching Daniel play an absolutely hysterical game of Monopoly with his Uncle Ricky today, he is stuck in his ANC at 20 with zero monocytes. The 20 is not hindering his negotiating ability in any way. the low count however means he is not in recovery mode yet. If you don't remember from last time he held at 20 for like two weeks. Let's hope this is not the same pattern this time. Doctors are hoping we will be home by next week. I pray this is the case. He needs to get his ANC up to 100 but technically this can jump very quickly once it starts to go up. It just needs to START TO MOVE. So does his weight by the way. He is down a pound again but the doctors aren't to concerned. Daniel is determined to stay off of a feeding tube but just can't seem to find the right foods to fatten him up. I am so sick of the smell of McDonalds in here I could puke. He decided to not continue the Merinol (appetite stimulant) because he believes that was the cause of the seizure episode. I am not going to argue with him. Tonight we will venture out for some different high calorie food take out and hunker down for some shark week specials. We are looking for JAWS or Open Water on DVD if anyone has a copy, I can't believe Shark Week isn't featuring them late night. Maybe we can scare some white blood cells into him.
3 Comments
Shelly Phillips
8/11/2014 11:54:00 am
Praying! Those levels are tricky. Hoping they turn around soon!! Please give Daniel my best!
Reply
paul kochanski
8/11/2014 02:14:53 pm
Hi nadine...Keep up your inspiring support for Daniel and your family ..i am as well keeping you, Daniel and your family in my prayers for this situation to improve quickly
Reply
Leslie Sidell
8/11/2014 04:34:10 pm
Just want you to know we are sending love and good thoughts constantly! Glad to hear of a stable day.
Reply
Leave a Reply. |
Archives
July 2016
CategoriesAuthorNadine |