Here is Daniel's new decorated tree. It is a busy epicenter of commotion that is NONSTOP beeping ringing, buzzing and chirping. Many things I can silence when alarming but all only let you have a minute to two between alarming. THe good news is, Daniel must not be critical enough that they feel the need to come running for routine beeping. Now that we are tucked in the corner suite it is less likely that they come running for some reason. I guess I will be back to adding up my miles again. THe up down every two minutes gets me that much closer to my new year's resolution of building an ass this year. Yep, you heard me.
Today was a pretty good day. Nothing much new and exciting happened medically which makes me happy. We moved rooms to a nice little quiet corner. We have an exterior part to our room for more privacy from the hallway and talking and lights which is nice and a big bathroom and shower. It is nice to just hang out in the quiet now, especially since I woke up with a headache and haven’t been able to shake it all day. I was thrilled that after Rob got here to watch the football game that Daniel pretty much slept through, that Matthew showed up and we went downstairs for a late lunch. We had such an unbelievably nice grown up conversation and he has been so sweet and kind to Daniel these past couple days and it is making me so happy to see him maturing. Daniel had one bought of nausea which he tryied so hard to prevent from throwing up. Unfortunately he didn’t succeed and ended up throwing up, but very little. The tube stayed intact and we will back off on increasing his rate or amount of formula for a bit. I think he will hold at tsp. an hour for the night and try again tomorrow. His today’s exray didn’t show much improvement but did not show worsening and he is doing better with less oxygen with very short periods of room air. He took a shower and sat in the chair for a short time today as well. Baby steps back are fine for now. I did notice that along with his hair really filling in and growing back that he now has a little mustache. I joked and told him I didn’t like it (because that means he is growing up too fast), he immediately came back at me with “I don’t like yours either.” Yep, he still has his feistiness which will serve him well.
Here is Daniel's new decorated tree. It is a busy epicenter of commotion that is NONSTOP beeping ringing, buzzing and chirping. Many things I can silence when alarming but all only let you have a minute to two between alarming. THe good news is, Daniel must not be critical enough that they feel the need to come running for routine beeping. Now that we are tucked in the corner suite it is less likely that they come running for some reason. I guess I will be back to adding up my miles again. THe up down every two minutes gets me that much closer to my new year's resolution of building an ass this year. Yep, you heard me.
2 Comments
Wendy
1/10/2015 03:34:21 pm
Nadine,
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5/16/2016 04:05:21 am
Boy, do I have a lot to tell you this week! I'll start with my youngest friends and work my way to the oldest kiddos
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