Up and at 'em. Puking in his portable bucket as we waited for our early ecocardiogram appointment, Daniel graciously thanked the receptionist for her minty offering from her personal stash, and started a conversation about where she got them, because he now wants me to find some more for next time this happens. The staff amazes me that it doesn't phase them with the sick children all around. we proceed to get an ultasound of his heart and EKG which are standard throughout chemotherapy because of the damage the drugs can do to your heart. Daniel totes his bucket and proceeds to fall fast asleep while the technician does the test. He exclaims "Well they don't get more relaxed than this I guess." Once we are done we went to get all of our stuff to move back into the oncology floor. Luckily, Rob called last night and the room we had last time was still available so we went straight up to the 7th floor and our name was on the door ready for us. No, no welcome sign or balloons, just our name on the door.
I wouldn't exactly say home sweet home, but I think Daniel was feeling somewhat okay with being back. Almost comforted by his safer surroundings. I know that sounds ironically strange but I guess I understand how scary the world seems to him now. It is probably why he didn't want to leave the house at all and go for ice cream or out for lunch when we tried to get him to go. When we got back up to the 7th floor the nurses greeted him sort of sadly about being back but Daniel was anything but sad to see them. He was so happy to see Amy who quickly started talking to him about ARGH!!! Lacrosse- Seriously Amy- Lacrosse! I don't know if I can handle this. I left them to catch up and went back down to unload the car because for some reason he looked uncomfortably comfortable. Unloading the car, the valet guy graciously helped me, attentively listened to Daniel's story and wrote our names on his hand. He said that was his daily prayer list that we were now on, then proceeded to load up two red wagons and leave his post and pull them upstairs to room 750 for me.
When I got up there Daniel was chatting with the nurses and finishing his first box of Tam Tam crackers for the day. He has been eating a box a day this week. We aren't fully checked in yet but it is just after two o'clock now and after a very difficult conversation about sperm banking with a wonderful nurse who expertly explained why we should do this even though it is not something that a 14 year old would ever really be thinking about right now, Daniel is having a well deserved nap. I am unpacking and wondering how to make the room look a little nicer and warmer for the next month we will be here. We will probably start Chemotherapy later this afternoon after someone from the fertility team comes up (I sure hope for Daniel's sake she is cute at least). The nurse that came in to explain the whole course of treatment said that this course should be easier, the Doctor described that it would be more difficult. I am not sure what to think. I am getting used to uncertainty that is for certain which for me is huge personal growth. Right now I do know that we are just hanging out and no one is bothering us or even seems to know we are here so I think I will just enjoy a quiet moment in our new and once again familiar surroundings.
I wouldn't exactly say home sweet home, but I think Daniel was feeling somewhat okay with being back. Almost comforted by his safer surroundings. I know that sounds ironically strange but I guess I understand how scary the world seems to him now. It is probably why he didn't want to leave the house at all and go for ice cream or out for lunch when we tried to get him to go. When we got back up to the 7th floor the nurses greeted him sort of sadly about being back but Daniel was anything but sad to see them. He was so happy to see Amy who quickly started talking to him about ARGH!!! Lacrosse- Seriously Amy- Lacrosse! I don't know if I can handle this. I left them to catch up and went back down to unload the car because for some reason he looked uncomfortably comfortable. Unloading the car, the valet guy graciously helped me, attentively listened to Daniel's story and wrote our names on his hand. He said that was his daily prayer list that we were now on, then proceeded to load up two red wagons and leave his post and pull them upstairs to room 750 for me.
When I got up there Daniel was chatting with the nurses and finishing his first box of Tam Tam crackers for the day. He has been eating a box a day this week. We aren't fully checked in yet but it is just after two o'clock now and after a very difficult conversation about sperm banking with a wonderful nurse who expertly explained why we should do this even though it is not something that a 14 year old would ever really be thinking about right now, Daniel is having a well deserved nap. I am unpacking and wondering how to make the room look a little nicer and warmer for the next month we will be here. We will probably start Chemotherapy later this afternoon after someone from the fertility team comes up (I sure hope for Daniel's sake she is cute at least). The nurse that came in to explain the whole course of treatment said that this course should be easier, the Doctor described that it would be more difficult. I am not sure what to think. I am getting used to uncertainty that is for certain which for me is huge personal growth. Right now I do know that we are just hanging out and no one is bothering us or even seems to know we are here so I think I will just enjoy a quiet moment in our new and once again familiar surroundings.