I have not written a blog in several days because I have had some down time. I had to have some surgery on Friday to revise my previous mastectomy reconstruction and although everything went fine I have treated myself to some relaxation and recovery time. I can’t say I have been pampered but I have had a few nice visits from friends and lots of sleep and some nice quiet time. What I did have though was some loving care and company from Daniel. He spent the whole first night and next day of recovery right by my side. He cuddled up and helped me with whatever I wanted and I was obvious that it was with 100% honest love that he was returning the past year of care and attention. The added bonus is that Daniel having his permit can now do the driving to his appointments and mine too.
An update about his eye treatments is that they are going well. On Monday, after 5 treatments he had an assessment that showed the treatments he is getting ae shrinking the presence of infection in his eyes. Although the dilating he needed to have for this assessment effected his sensitivity to light terribly all day, overall he is doing great with treatments and has very little downtime after each one now. He will soon shift to a once a week schedule instead of twice a week but is still sedated for these so it is still pretty significant. We seem to have the perfect cocktail or have found the sweet spot so to speak of getting him to sleep and awake again quickly and easily with little issue.
As far as the CMV in his blood he is unfortunately back up and out of the negative range and in the QNQ range but we know that it is very low (QNQ is anywhere between 0 and 999 and generally undetectable). Because he has slipped back up they are looking more closely and can tell it is very, very low. This is not great but reassuring that it is so low. Treatment continues to stay the same.
If we don’t have enough going on these days, Matthew did something and sprained his wrist. Why not right? AAAARRRGGHHH. Slip in another appointment with an orthopedic specialist and he is two weeks in a splint. Under other circumstances I may have brushed it off but if there is one thing I have learned this last year is listen to your kids and pursue their concerns. Never disregard a medical concern and listen to details carefully. So splint for a couple weeks and follow up and although he can’t lift anything heavy for that time Rob has assured him there is plenty of NOT HEAVY paper work he can help catch up on at work. Sorry, no time off for Matthew.
So busy, busy but same same.
An update about his eye treatments is that they are going well. On Monday, after 5 treatments he had an assessment that showed the treatments he is getting ae shrinking the presence of infection in his eyes. Although the dilating he needed to have for this assessment effected his sensitivity to light terribly all day, overall he is doing great with treatments and has very little downtime after each one now. He will soon shift to a once a week schedule instead of twice a week but is still sedated for these so it is still pretty significant. We seem to have the perfect cocktail or have found the sweet spot so to speak of getting him to sleep and awake again quickly and easily with little issue.
As far as the CMV in his blood he is unfortunately back up and out of the negative range and in the QNQ range but we know that it is very low (QNQ is anywhere between 0 and 999 and generally undetectable). Because he has slipped back up they are looking more closely and can tell it is very, very low. This is not great but reassuring that it is so low. Treatment continues to stay the same.
If we don’t have enough going on these days, Matthew did something and sprained his wrist. Why not right? AAAARRRGGHHH. Slip in another appointment with an orthopedic specialist and he is two weeks in a splint. Under other circumstances I may have brushed it off but if there is one thing I have learned this last year is listen to your kids and pursue their concerns. Never disregard a medical concern and listen to details carefully. So splint for a couple weeks and follow up and although he can’t lift anything heavy for that time Rob has assured him there is plenty of NOT HEAVY paper work he can help catch up on at work. Sorry, no time off for Matthew.
So busy, busy but same same.